Friday, May 4, 2018

Life Changing Inspirations from One Author (Part 5 of 5)

 

(This post was created on: July 08, 2016
 originally published at
 Reflections Beneath the Poetz Tree)


In recognition of the author who inspired so many changes in my life five years ago...
here's a re-post from 2013.


  PLUS links to A. Adams Jones
 books and video synopsis.



Another Answer to "Why did I end up here?"
Part 5

Written by: M.B.Varville-Rodriguez



So many times I wonder why things happen the way they do.  This summer was one I will always remember.  My previous blog entries explained how I took a vacation with my children and ended up relocating to another state.  The series of unplanned and unpredictable circumstances left me feeling confused at times.  I had to push away moments of self-doubt and feelings of guilt that I had disappointed my family.  Challenges have a way of doing that to a person.  Here's what I hope to share with you today...


There is usually a plan and reasons behind unexpected detours.  In time, the reasons are revealed and the answers to, "Why did I end up here?" are clarified.  Last Wednesday was my time to have some of those questions answered.  I can't begin to tell you how relieved and grateful I am that God had a bigger plan in mind for my family than I could have ever imagined.


All of my children have problems with asthma.  Last year my son, Nathan, struggled the most with asthma related symptoms. He frequently needed to use inhalers and a nebulizer when his breathing was affected.  Often, he experienced facial swelling and fevers that prompted several visits to the Emergency Room.  Each time, he was given breathing treatments and Prednisone, a steroid, to treat his symptoms.  Nathan's Pediatrician reassured me that the swelling resulted from asthma.  I asked if there could be something else wrong beside the asthma, but was advised that many children have similar symptoms.  We continued to adhere to our treatment protocol with a Ventolin inhaler as needed, Flovent 2x/daily, and Albuterol via Nebulizer at night when his coughing was severe enough to keep him awake at night.  This went on for over a  year.


During out stay in Colorado this summer, the children experienced reduced asthma symptoms.  Now of them required Albuterol via Nebulizer.  Their need for inhaler treatments significantly decreased.  We only used the inhalers 2-3x all summer.  It was wonderful to have an illness-free summer.  Due to our "immediate relocation" requirement, (See post from http://www.worldofwritermom.org/2018/04/life-changing-inspirations-from-one.html), I ended up reapplying for health insurance in Colorado.  I immediately arranged medical appointments for all children since we needed to have a place to transfer medical records from Georgia to Colorado.  The appointments were scheduled just in time.  Nathan was diagnosed with a chronic medical condition that will require on-going monitoring.


A little over one week ago Nathan began to retain fluids that made his face, legs, and stomach swell more that we had ever seen before.  Thankfully, he had an appointment scheduled for last Wednesday.  I told the doctor that our previous pediatrician had treated his symptoms as if he only had asthma.  I shared my concerns that I felt there was something more going on.  The doctor checked Nathan thoroughly and asked for a urine specimen.  Sure enough, he was spilling proteins into his urine.


Nathan was diagnosed with Nephrotic Syndrome, which is a type of kidney disease where there is a loss of protein in the urine.  When protein is lost from the blood, there is swelling of the face, arms, legs, and abdomen as fluids leak into these tissues.  The cause in uncertain.  The doctor told me that taking him to the Emergency Room, where he was given Prednisone (a steroid), probably kept him from going into kidney failure.  I wish his previous pediatrician had been more aware of this disease!  I kept thinking, "What if I hadn't taken him to the ER as often as I did?"  A mother's instinct should always be taken seriously!


I am relieved to finally have a reason for Nathan's frequent trips to the ER.  I am grateful for all the challenged I face this summer.  I am appreciative of this opportunity to recognize, recomment, and reinvent my family life here in Colorado.  Most of all, I feel blessed that I trust myself to take care of my family and take a huge leap of faith in remaining here.  I believe I had to be here so that I could establish a better network of medical care for my children; one I had struggled to maintain in Georgia. (Our health insurance situation there was tenuous at best.)


Nathan's swelling has already decreased since he has been taking the Prednisone.  His pediatrician is also prescribing medications for high blood pressure and to prevent stomach irritation, which are side effects of the Prednisone treatment protocol.  Thank God we found a great pediatrician who identified the problem.  So if anyone asks why I ended up here, I'll say it had to be a part of a bigger plan for our family.


Update from 07/08/2016 post

Nathan has been doing extremely well since his diagnosis three years ago.  His symptoms have been in remission for almost 2 years now, but we continue to have him tested every time he gets a cold or infection.  Thankfully that has been minimal.  He will need to continue being vigilant regarding this condition, but we feel hopeful that things are going well.  That first year of his treatments was challenging, as he required weekly visits to the doctor to check on medications.  I am grateful to his doctor and to the amazing medical assistant who knows our family so well.  I don't know what I'd do without the excellent care and support they provide to my children and to me as the parent.



Update as of 05/04/2018

We had a little scare back in February when Nathan had strep throat.  I always ask to have his proteins checked when he gets sick.  This time his pediatrician was out for maternity leave, so we saw another doctor in the same practice.  Thank God there were plenty of notes to document his history, so when I requested the test there was no question.  At that time, protein was present in his urine, so the doctor started him on Prednisone for 2 weeks.  A follow up after completion of his antibiotics (for the strep) plus the steroid protocol was scheduled.  Shortly after we started the treatment protocol, our family had another emergency when I found out my father was in the hospital.  We were not able to return within the 2 weeks for Nathan's appointment. When we got back home, a trip to the doctor showed no proteins were being spilled into the urine.  Thankful we we were able to take care of the minor relapse of the Nephrotic Syndrome and everything looks good at the moment.


 Advocacy Point

It is so important to establish a medical history for each family member with a consistent medical care provider when possible.  It's ultimately up to you as the parent to insist on finding out the best course of treatment for your children, and keep records of your concerns so you can be a solid advocate.  Demonstrating your organization and approach with medical management will also be a great example for your children.  You want them to grow into strong advocates for themselves.  
As soon as children can speak for themselves, encourage them to answer the doctor's questions, with you as their back up.  It begins with telling the doctor their name and date of birth.  Gradually work toward having your child help describe their own symptoms and concerns.  You may need to be the one to navigate this process, since many of the  questions asked by the medical assistant and doctor are directed to the parent.  Refer back to your child when you feel they are ready to speak for themselves. 


 Final thoughts on this 5 Part Series
Life Changing Inspirations 


You never know how a chance meeting with someone can inspire you, change your direction, or push you out of your comfort zone.  That one moment in time when my 5-year-old asked to go to the park, the day A.Adams Jones chose the park as a place to share her new book, the rainy day and my hungry children, and my courage to put my introverted personality on hold for the sake of my children and my interest in writing...all those factors came together.  It was there for me.  It was my decision to engage in a conversation or retreat. 

I often wonder what would have happened if those events did not occur.  Life is a series of choices, decision, and consequences.  How we react, respond, and reinvent ourselves.... the options may not always feel fabulous, the results are usually not immediate, and the struggles often seem endless.  We just need to keep moving forward and see this as an adventure.  Remember, kids need experiences far more than they need things.  Things don't create the memories.  (Books are okay. You can never have too many of those.😉)  




Here's the Author who encouraged me by sharing her own story 
of perseverance, inspiration, and passion for advocacy.  
Check out her book and listen with your heart. 
You'll hear the message!


PARTS I and II Now Available


Blind Innocence ebook by A. Adams Jones
Blind INNOCENCE II - AFTER THE STORM ebook by A. Adams Jones 

Wishing A.Adams Jones and all of her talented family of authors
Much Success!


Writing for these characters and hoping to make a difference.
Copyright 2018 World of Writer Mom


SPECIAL RECOGNITION

http://aadamsjonespublishing.com/assets/media/images/authorpose3.jpg


Thanks to A.Adams Jones, Author
 http://aadamsjonespublishing.com/about-author


We appreciate that you took time to speak with us
5 Years Ago!
Keep inspiring others to become advocates for those
who are disenfranchised, misunderstood, and marginalized
Thank You for sharing Terell's Story







2 comments:

  1. This was inspiring! thank you!

    ReplyDelete
    Replies
    1. Hello Kaitlen! Thank you so much for reading and commenting! Kindest Wishes, ~ Mary

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I have over 20 years of experience in Early Childhood Development Birth-Age 5 including work in classrooms and as an Infant/Toddler Program Manager.  I have several writing projects in progress including a resource book for parents of infants and infant room teachers in a full day child development (school) program.  The book will provide families with information about what to expect and how to monitor their child's progress in an Infant room.  My second book project involves how to cope with family challenges, lessons in forgiveness, dealing with a spouse's addiction, and reinventing yourself along the way.  I am excited about all of these projects and am currently accepting comments regarding experiences my readers have had placing their child into a full day child care program.  I would also like to hear from Infant room teachers.