Tuesday, June 12, 2018

International Neuroblastoma Awareness Week 2018



https://www.isupportcause.com/campaign/international-neuroblastoma-awareness-week


When I sat next to Keith Easter in High School Band Class, he was kind and very much like a big brother.  Yet nobody in high school ever thinks something like this will happen to their own children.  Years later, here he is making a difference to so many children along with his amazing family.  Please take time to read their story by clicking on the picture below and reading what Keith has to say about the recent STAR Act being passed into law.   



 https://www.gofundme.com/allisonsarmy


It is incredibly heartbreaking when a child is given the diagnosis of CANCER.  The following information is presented by R. Keith Easter, who along with his wife, Irma, have helped their little one battle neuroblastoma.  Please help raise awareness by reading, commenting, educating yourselves via the links provided, and sharing with as many people as many times possible! 


 Today is the beginning of 
International Neuroblastoma Awareness Week.
 11 - 17 June 2018

by: R. Keith Easter and Irma


Image may contain: 2 people

 
Today is the beginning of International Neuroblastoma Awareness Week. You may ask, What is Neuroblastoma? Please click on the link below to learn more about this extremely aggressive cancer that came after our little Allison, and so many other children. 


Irma and I never knew so many children got cancer, and we had never heard of Neuroblastoma, until it invaded our child and changed our lives forever. The treatment for NB is one of the most intense and dangerous of ALL cancers, childhood or adult.


In May 2016 Allison was diagnosed with Stage IV high risk Neuroblastoma with unfavorable histology. She immediately had a tumor removed, followed by 6 rounds of chemotherapy, 2 high dose chemotherapy with Stem Cell transplants, 20 radiation treatments, and 6 immunotherapy treatments all over 17 months costing 2.5 million dollars. 


Now that Allison is NED or in remission and in a DFMO phase II drug trial, I am trying to do more to advocate for children with cancer. We just got the STAR Act passed in Congress and signed into law by President Trump. Now, we need to make sure Congress funds the law so we can make sure our children battling cancer get what they need. 





 
Making society aware of childhood cancer will help all children both in the United States and around the world. 
We must do everything we can for our children!! 




 
https://www.isupportcause.com/campaign/international-neuroblastoma-awareness-week





6 comments:

  1. Thank you so much for sharing this. I did not know a lot of this so thank you for teaching me something new and bringing awareness to this!

    ReplyDelete
    Replies
    1. Hi Stephanie! Thank you for taking time to read and comment. You are appreciated! Wishing you a beautiful day!

      Delete
  2. Thanks for sharing. It's crazy to me how often kids get cancer - and just people in general. More needs to be done for sure.

    -Lauren
    www.shootingstarsmag.net

    ReplyDelete
    Replies
    1. Hi Lauren! This one really touched my heart. I've worked with kiddos who have had serious medical conditions, but this type of cancer shocked me. When Keith explained the intense, traumatic treatment protocol, I was heartbroken for the children and their families. Thank you for reading this post and commenting. I appreciate you!

      Delete
  3. I was unaware of this particular cancer. It's awesome to see advocates like you bringing attention to it. Thank you for sharing.

    ReplyDelete
    Replies
    1. Hi Christina! Thank you for taking time to read and respond to this post. I am grateful to the parents who endure so much with their children yet find the strength to continue the fight for all children. Please share wherever possible to help with this awareness campaign. You are appreciated!

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Mary Varville-Rodriguez, BSW, Child Development/Early Intervention Specialist/Advocate (15+ years), Prior experiences: AFAA Certified (Frankfurt, Germany) & Global Wellness Certified (Augsburg, Germany) for Personal Trainer/Aerobics Instructor/Exercise Prescription, UTMB at Galveston Dept. of Pediatrics - Project LAUNCH - Community Outreach/Referral Development/EIS-C, Current: World of Writer Mom.org Writer/Publisher/Marketing Affiliate/Advocate